{"id":9000,"date":"2025-12-12T11:57:43","date_gmt":"2025-12-12T10:57:43","guid":{"rendered":"https:\/\/www.kedrion.it\/?post_type=our_stories&p=9000"},"modified":"2025-12-12T16:37:56","modified_gmt":"2025-12-12T15:37:56","slug":"aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy","status":"publish","type":"our_stories","link":"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/","title":{"rendered":"AIP, patient advocacy and a shared commitment to better PID care in Italy"},"content":{"rendered":"\n
\n
\n
\n
\n #TogetherForPIDPatients<\/span>\n

AIP (Associazione Immunodeficienze Primitive) has become a reference point for people living with Primary Immunodeficiencies in Italy. Under the leadership of Alessandro Segato, President of AIP – Associazione Immunodeficienze Primitive,<\/strong> the association works to promote earlier diagnosis, strengthen collaboration between specialties and ensure that patients across the country receive equitable access to essential therapies.<\/p>\n

 <\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n\n\n\n

\n\n
\n
\n \"\"\n <\/figure>\n
\n
\n

\u201cAfter many years of work, we are finally seeing the results of a dialogue that brings everyone to the same table with a shared goal: protecting and improving the lives of people with PID.\u201d
\n<\/em>Alessandro Segato, President of AIP – Associazione Immunodeficienze Primitive<\/strong><\/p>\n<\/p>\n <\/div>\n

\n <\/span>\n <\/div>\n <\/div>\n <\/div>\n \n<\/div>\n\n\n\n
\n
\n
\n
\n <\/span>\n

Among the initiatives that embody this collaborative spirit are two projects recently launched in 2025, both supported by Kedrion Biopharma through an unconditional grant<\/strong>. Home With You<\/strong>, launched on December 3, 2025, weaves together the voices of patients, donors, clinicians and those involved in the production of plasma-derived therapies. The format highlights how every part of the pathway, from donation to treatment, contributes to the quality of life of people living with PID. In addition, MAPPA<\/strong><\/a> collects patient experiences across Italy to better understand needs and gaps in the care pathway. By amplifying the voices of people with PID, the project helps identify where access, support and information can be strengthened.<\/p>\n

AIP is also engaged in constructive dialogue with national institutions regarding plasma availability and access to therapies. Segato explains that limited plasma collection could impact treatment continuity for PID patients, reinforcing the need for attention and coordinated planning.<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n\n\n\n

\n\n
\n
\n \"\"\n <\/figure>\n
\n
\n

\u201cThese are essential therapies for our community, and ensuring their availability is very important for continuity of care.\u201d<\/em>
\nAlessandro Segato, President of AIP – Associazione Immunodeficienze Primitive<\/strong><\/p>\n<\/p>\n <\/div>\n

\n <\/span>\n <\/div>\n <\/div>\n <\/div>\n \n<\/div>\n\n\n\n
\n
\n
\n
\n <\/span>\n

Segato also emphasises the essential role of plasma donors in this ecosystem. Their ongoing generosity makes it possible to maintain a stable supply of plasma, helping to ensure the availability of treatments and continuity of care<\/strong> for many people with PID.<\/p>\n

For many years, AIP and Kedrion have shared a commitment to improving the lives of people with Primary Immunodeficiencies.<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n\n","protected":false},"featured_media":9013,"parent":0,"menu_order":0,"template":"our_stories\/stories_video.php","categories_our_stories":[105],"class_list":["post-9000","our_stories","type-our_stories","status-publish","has-post-thumbnail","hentry","categories_our_stories-people"],"acf":[],"yoast_head":"\nAIP, patient advocacy and a shared commitment to better PID care in Italy - Kedrion Biopharma<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"AIP, patient advocacy and a shared commitment to better PID care in Italy - Kedrion Biopharma\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/\" \/>\n<meta property=\"og:site_name\" content=\"Kedrion Biopharma\" \/>\n<meta property=\"article:modified_time\" content=\"2025-12-12T15:37:56+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.kedrion.it\/wp-content\/uploads\/2025\/12\/P1184190-2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"4544\" \/>\n\t<meta property=\"og:image:height\" content=\"2928\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/\",\"url\":\"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/\",\"name\":\"AIP, patient advocacy and a shared commitment to better PID care in Italy - Kedrion Biopharma\",\"isPartOf\":{\"@id\":\"https:\/\/www.kedrion.it\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.kedrion.it\/wp-content\/uploads\/2025\/12\/P1184190-2.jpg\",\"datePublished\":\"2025-12-12T10:57:43+00:00\",\"dateModified\":\"2025-12-12T15:37:56+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/#primaryimage\",\"url\":\"https:\/\/www.kedrion.it\/wp-content\/uploads\/2025\/12\/P1184190-2.jpg\",\"contentUrl\":\"https:\/\/www.kedrion.it\/wp-content\/uploads\/2025\/12\/P1184190-2.jpg\",\"width\":4544,\"height\":2928},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.kedrion.it\/en\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Our Stories\",\"item\":\"https:\/\/www.kedrion.it\/our-stories\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"AIP, patient advocacy and a shared commitment to better PID care in Italy\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.kedrion.it\/#website\",\"url\":\"https:\/\/www.kedrion.it\/\",\"name\":\"Kedrion Biopharma\",\"description\":\"Plasma-Derived Medicinal Products | Keep Life Flowing\",\"publisher\":{\"@id\":\"https:\/\/www.kedrion.it\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.kedrion.it\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.kedrion.it\/#organization\",\"name\":\"Kedrion S.p.A.\",\"url\":\"https:\/\/www.kedrion.it\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.kedrion.it\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.kedrion.it\/wp-content\/uploads\/2021\/04\/Logo-Kedrion-yellow-1.jpg\",\"contentUrl\":\"https:\/\/www.kedrion.it\/wp-content\/uploads\/2021\/04\/Logo-Kedrion-yellow-1.jpg\",\"width\":1772,\"height\":870,\"caption\":\"Kedrion S.p.A.\"},\"image\":{\"@id\":\"https:\/\/www.kedrion.it\/#\/schema\/logo\/image\/\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"AIP, patient advocacy and a shared commitment to better PID care in Italy - Kedrion Biopharma","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/","og_locale":"en_US","og_type":"article","og_title":"AIP, patient advocacy and a shared commitment to better PID care in Italy - Kedrion Biopharma","og_url":"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/","og_site_name":"Kedrion Biopharma","article_modified_time":"2025-12-12T15:37:56+00:00","og_image":[{"width":4544,"height":2928,"url":"https:\/\/www.kedrion.it\/wp-content\/uploads\/2025\/12\/P1184190-2.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_misc":{"Est. reading time":"1 minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/","url":"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/","name":"AIP, patient advocacy and a shared commitment to better PID care in Italy - Kedrion Biopharma","isPartOf":{"@id":"https:\/\/www.kedrion.it\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/#primaryimage"},"image":{"@id":"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/#primaryimage"},"thumbnailUrl":"https:\/\/www.kedrion.it\/wp-content\/uploads\/2025\/12\/P1184190-2.jpg","datePublished":"2025-12-12T10:57:43+00:00","dateModified":"2025-12-12T15:37:56+00:00","breadcrumb":{"@id":"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/#primaryimage","url":"https:\/\/www.kedrion.it\/wp-content\/uploads\/2025\/12\/P1184190-2.jpg","contentUrl":"https:\/\/www.kedrion.it\/wp-content\/uploads\/2025\/12\/P1184190-2.jpg","width":4544,"height":2928},{"@type":"BreadcrumbList","@id":"https:\/\/www.kedrion.it\/en\/our-stories\/aip-patient-advocacy-and-a-shared-commitment-to-better-pid-care-in-italy\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.kedrion.it\/en\/"},{"@type":"ListItem","position":2,"name":"Our Stories","item":"https:\/\/www.kedrion.it\/our-stories\/"},{"@type":"ListItem","position":3,"name":"AIP, patient advocacy and a shared commitment to better PID care in Italy"}]},{"@type":"WebSite","@id":"https:\/\/www.kedrion.it\/#website","url":"https:\/\/www.kedrion.it\/","name":"Kedrion Biopharma","description":"Plasma-Derived Medicinal Products | Keep Life Flowing","publisher":{"@id":"https:\/\/www.kedrion.it\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.kedrion.it\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/www.kedrion.it\/#organization","name":"Kedrion S.p.A.","url":"https:\/\/www.kedrion.it\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.kedrion.it\/#\/schema\/logo\/image\/","url":"https:\/\/www.kedrion.it\/wp-content\/uploads\/2021\/04\/Logo-Kedrion-yellow-1.jpg","contentUrl":"https:\/\/www.kedrion.it\/wp-content\/uploads\/2021\/04\/Logo-Kedrion-yellow-1.jpg","width":1772,"height":870,"caption":"Kedrion S.p.A."},"image":{"@id":"https:\/\/www.kedrion.it\/#\/schema\/logo\/image\/"}}]}},"_links":{"self":[{"href":"https:\/\/www.kedrion.it\/en\/wp-json\/wp\/v2\/our_stories\/9000","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.kedrion.it\/en\/wp-json\/wp\/v2\/our_stories"}],"about":[{"href":"https:\/\/www.kedrion.it\/en\/wp-json\/wp\/v2\/types\/our_stories"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.kedrion.it\/en\/wp-json\/wp\/v2\/media\/9013"}],"wp:attachment":[{"href":"https:\/\/www.kedrion.it\/en\/wp-json\/wp\/v2\/media?parent=9000"}],"wp:term":[{"taxonomy":"categories_our_stories","embeddable":true,"href":"https:\/\/www.kedrion.it\/en\/wp-json\/wp\/v2\/categories_our_stories?post=9000"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}