#PatientFirst
In the field of Congenital Bleeding Disorders, progress holds real value only when it translates into tangible improvements in patients’ lives. This means protecting rights, ensuring access to appropriate care, and making sure that the needs of the community are represented where decisions are made. In Italy, this is the role FedEmo has carried forward for 30 years on behalf of people living with rare bleeding disorders.
Cristina Cassone, President of FedEmo, outlines the priorities shaping this commitment today. A key focus is protecting the safeguards and benefits achieved over time for people living with Congenital Bleeding Disorders, ensuring that no one is excluded from the support and care they need because of their condition.
Another urgent priority is preserving the quality of care in treatment centers. For World Hemophilia Day 2026, FedEmo emphasized the need to recognize and strengthen the role of healthcare professionals specialized in hemostasis and thrombosis. Their presence remains essential to guaranteeing the dedicated, expert care that patients rely on today and will continue to need in the future.
“We look to younger generations, but we also want to protect those who have devoted themselves full-time to these disorders up to now.”
Cristina Cassone, President, FedEmo
This long-term vision also takes shape through Scuola FedEmo, a training initiative created to support young members from local associations and help them develop the skills needed to represent the community effectively. By investing in education and advocacy, FedEmo is helping build a stronger future for patient representation at both national and international level.
At the center of all these priorities is one clear principle: patients must remain at the heart of every action. By turning representation into impact, and advocacy into concrete progress, FedEmo continues to work toward a future where every person living with a Congenital Bleeding Disorder can count on dedicated care, stronger protection, and timely access to treatment.
As every year on World Hemophilia Day, which is celebrated worldwide on April 17th, Kedrion renewed its commitment to take care of patients, in addition to supporting their families and associations.
